I called Dr. Elliott last week the morning after our return from the hospital to ask about the clot that had formed and stopped the bleeding around Stuart’s heart. Whether I should worry about it breaking off and moving somewhere. Should he be jumping off of his little sofa onto the floor? Or going up and down steps quickly?
She’s more concerned about his heart rate than about the clot.
At first, I think she was amazed that he was so active. Then, she told us not to “put him in a bubble” – to let him be himself and not worry. There’s nothing we can do about anything, except that if we see him start to jump off the sofa, just help him. Don’t let him do it by himself if we happen to be right there.
I started to cry. One of those chest heaving cries that you can’t stop very quickly. And she compassionately, but forcefully, admonished me.
“Be happy around him. If you need to have a meltdown, go into another room. Be happy. I want you to BE HAPPY AROUND HIM.”
Wiser words were never spoken. Not even by Stuart.